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Mary Jo M.

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1 reviews

Review for Multiple System Atrophy Coalition, Charlotte, NC, USA

Rating: 5 stars  

In early 2014, my husband Scott was told by a neurologist that he had a Parkinsonism. He was then handed some literature about Multiple System Atrophy, and was told "this is your worst case scenario".

Here we are almost 5 years later, trying to live with that "worst case scenario".

Being a rare disorder, not a lot of information is readily available and I was gathering up what little knowledge there is out there. That's when I came upon The Multiple System Atrophy Coalition. This organization is a godsend to those living this horrible nightmare. The research, the conferences, the fundraisers, and the people in this community help all of those who suffer, and their loved ones.

Although we struggle daily, my husband and I know that if there is ever an issue we don't understand, or a question or concern, we can always turn to the Multiple System Atrophy Coalition for guidance and support. I'm not sure what we would do without this organization.

Role:  Client Served