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Review for Multiple System Atrophy Coalition, Charlotte, NC, USA

Rating: 5 stars  

The Multiple System Atrophy Coalition is an absolutely wonderful source of information and compassion. When my Father was diagnosed with this horribly debilitating, life limiting disease so many physicians had never heard of this disease before, which made it near impossible to diagnose or treat. We had no idea when we heard “we believe he has Multiple System Atrophy” meant. When I googled what it was I was devastated, yet so very thankful to find in the next key stoke the MSA Coalition. They were so very wonderful with all of my questions and helped me through my stages of grief as my Dad travelled through his MSA journey. I made lifetime friends through their annual conference that they host for patients, caregivers and family. These folks have family members who are or have gone through this disease and I’m so thankful for their friendships. This organization is around 24/7 with their volunteer board trying to help patients and caregivers. They work tirelessly to raise funds for research to find a cure! I couldn’t be more appreciative and thankful for this organization.

Role:  Donor