My Nonprofit Reviews
Review for Multiple System Atrophy Coalition, Charlotte, NC, USA
I was diagnosed in 2012 with Multiple System Atrophy. The only thing I really knew about MSA was that there is no treatment, no cure and it is fatal. It was a feeling of disbelief, not knowing what to expect or how to manage this disease. I contacted the MSA Coalition support line and a very caring voice at the other end introduced me to the Coalition. The MSA Coalition has been a blessing. The Board Of Directors and volunteers are dedicated to giving support/ educate patients, families and caregivers. They fund for research, and each year organize the Patient/Family Conference. A two day conference with a panel of Doctors experienced in Movement Disorders. It's a time to learn, meet the Board of Directors, other patients , their families, friends and caregivers.
The MSA Coalition gives HOPE to a devastating disease.