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dcastleberry1

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1 reviews

Review for Multiple System Atrophy Coalition, Charlotte, NC, USA

Rating: 5 stars  

My first awareness was when my brother Fred James was finally diagnosed with MSA I believe 21 years ago or more. My sister n law Vera was his sole caregiver and did her best to find out more about this dreaded disease. Fred once told me he will be totally aware he is totally trapped in his own body...Fred succumbed to MSA in January 2003.
It was then my sister n law Vera made a life long commitment in finding research for a cure for the other people affected from this neurodegenerative disorder.
That is when I was made aware of The MSA Coalition.
The MSA Coalition is dedicated to research, patient care, and caregiver education, education for healthcare professionals, emotional support, all research needs.
This all has to be funded!
Needed fund raisers, donations for research to accomplish a cure.
The MSA Coalition is wonderful in making use of these funds in research.
We need to speak out to make more awareness this will in return help get funds the for research on these neurodegenerative diseases.
This review is written in memory of my brother Fred, to all the other fallen MSA angels. To all the patients that are fighting this. And a thank you to the MSA Coalition and to Vera for helping me be aware!

Role:  General Member of the Public