My Nonprofit Reviews

Defeat MSA is the best. Why do I say this with such strong affirmation? There isn't enough space on this page to list each reason, so I will highlight from my own experience.
When my brother was diagnosed with MSA/P in 2007, with all my years of experience in the health industry; I had never heard of this disease.
I felt mentally dizzy as every direction I turned to for advice, explanations and help, I received little to nothing. It was a woman named Vera James, who turned my head to Defeat MSA. I was overwhelmed at the caring attitudes, the helping voices, that guided me through the seven years my brother suffered from this beastly disease. I felt the feeling of standing alone in a desert, was gone and I had just inherited a vast amount of friendships from all over the world.
Unfortunately, my brother lost his battle in 2014, and yes, my own life was forced to move on without him, but I couldn't move on without joining the fight to find a cure.
The support you may need is right at your fingertips. There are awareness activities always somewhere close to your area.
There is a strong board of members willing to do more than expected. There are awards for work that was over the top. Volunteers from all over the map say in itself how strong and committed this group is.
If you learn that a friend or family member now has this diagnosis, it is normal to feel alone and scared but with the understanding and commitment from the Volunteers, scientists and doctors; you can reach your hands up and Defeat MSA will do everything possible to help you and to continue our fight for a cure.
Thanks for letting me share with you,
Terry Shepherd

I have to speak out about the MSA Coalition. My brother had Multiple System Atrophy and this is how I became familiar with this organization.
I couldn't have taken as good of care of my brother without their help. Day or night, my questions were answered, followed by pertinent information I could look into. I was able to speak directly with those who had so much to offer and I received a caring attitude and nine years later, still remain in touch and have also made life long friends.

My brother and I walked in and sat down in the doctor's office. The doctor walked in and sat down and said I'm sorry you have multiple system atrophy. He stood up and came over and patted me on the shoulder and wish me good luck and walk out the door. With all the medical training I have had I did not understand what multiple system atrophy was so I did the next best thing, I began researching. That's when I found multiple system atrophy coalition. They were a great resource and although my brother is no longer with me, multiple system atrophy it's still a part of my life today. They are very knowledgeable and they will do everything they can to help ease your mind and answer your questions. I don't believe I would have made it through it without them the seven years I took care of my brother. They continue to grow and become more knowledgeable and today because of that I now help other families that have questions. One day we will find a cure.

It started six years ago when my brother became ill with Multiple System Atrophy. Wow! Was I blown away. Although I had years of medical training under my belt; I had never heard of this disease nor the Multiple System Atrophy Coalition.
It didn't take long at all to find web sites about the Coalition and several pages for support groups and help. I sure did need it. With this wonderful nonprofit coalition, I was able to learn and eventually help my brother's doctors and Hospices have more information about this terrible disease. My brother made it for seven years. He passed 03/24/2014. Today, I still continue to be a part of this organization, helping to ease their fear and lead them to the MSA Coalition and different support sites. I couldn't have made it without this important organization. Below is a photo of my brother