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MEsince1989

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1 reviews

Review for American Myalgic Encephalomyelitis & Chronic Fatigue Syndrome Society, Whately, MA, USA

Rating: 5 stars  

AAMES.org is the only nonprofit that has ever existed for Myalgic Encephalomyelitis to aide patients who are under very difficult financial
hardship due to the complex disease that was named Chronic Fatigue Syndrome
so many years ago by the CDC. Unfortunately this name created a false idea
that this is a trivial disease,when in fact it is a devastating disease millions of people worldwide suffer from, and even die. AAMES.org needs support to help
so many people going without proper medical care, and disability benefits, and even housing. Without family there to help, many people like myself are
going without a support system to keep us safe from living on the street.
The very nature of how severe the disease can be needs to be met,because
life on the street, or living in a shelter or a car, just worsens the symptoms
to unbearable levels. For those who are ill it can be a tortuous existence being
unable to relieve the complex and often cruel neuroimmune symptoms. We need help so badly and no organization has been there before to help meet
the needs of the humanitarian crisis that Myalgic Encephalomyelitis
actually is, not just in the U.S.,but worldwide. Please help AAMES.org to increase funding for people with M.E. that have been hurting and neglected by
governments, the medical community, society, and even their own families
for so many decades of isolated and invisible suffering in silence. Please
don't allow Myalgic Encephalomyelitis to remain an orphaned disease any
longer and support AAMES.org in their efforts to provide much needed
and overdue financial support for those in need with such a limiting and
devastating life altering disease. Help AAMES.org now they are the only
organization that has helped me in the 30 years I have been ill.

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