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Don B.4

184 profile views
2 reviews

Review for C&S Patient Education Foundation, Wexford, PA, USA

Rating: 5 stars  

My Chiari Malformation was diagnosed in 2016 after I talked to a chiarian and they led me to the Conquer Chiari website, which then made me ask my physician for some testing to be done. Without Conquer Chiari (C&S Patient Education Foundation), I would've never known to ask further questions and what to exactly ask about.

I have been organizing my local event for going on 6 years now because I know how hard Conquer Chiari is working on finding out what is causing Chiari Malformation to occur.

Role:  Volunteer
 

Review for C&S Patient Education Foundation, Wexford, PA, USA

Rating: 5 stars  

I was officially diagnosed with Chiari at the end of 2016. At first, I didn't know much about Chiari. Luckily, I have a friend that had me go to Conquer Chiari's website, where I learned a lot about my diagnosis. I then went to a local Conquer Chiari walk in 2017 and realized that I was definitely not alone. I attended their open house in Akron, Ohio and was pleased with everything that I saw. It made me very happy to see that they are working hard to one day put a stop to Chiari Malformation and to get answers on why it happens. Thank you so much Conquer Chiari!

Role:  Volunteer