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bmartinux

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2 reviews

Review for Neurofibromatosis Midwest, St. Charles, IL, USA

Rating: 5 stars  

When my daughter was 2, she was diagnosed with NF. We had never heard of it and didn’t know where to turn. A friend researched support groups and suggested NF Midwest to us. 23 years later we’re still attending the annual NF symposium they sponsor and my daughter, now a Special Ed teacher, is still attending the NF summer camp — but now as a counselor rather than a camper. Thank you NF Midwest!

Role:  Donor
 

Review for Neurofibromatosis Midwest, St. Charles, IL, USA

Rating: 5 stars  

We became aware of NF Midwest 20 years ago when my daughter was first diagnosed with NF at age 2. It's been part of our lives ever since, providing help and support all along the way - from initially helping us understand the disorder and what to watch for at different ages/stages, to finding an NF specialist, to networking with other families, and perhaps most importantly, the life-long friends our daughter has made through the summer camp where she is now a counselor. Thank you NF Midwest!

Role:  Volunteer