My Nonprofit Reviews

I Cannot say enough wondeful things about the diamond blackfan anemia foundation. My daughter 18 years old has DBA. Because of this wonderful foundation we have learned so much about DBA. Being from newfoundland ,Canada there is only one other case of DBA in our province. The dbaf has helped me to stay on top of new and current treatments available. Have connected us with other families just like us. They fund research to help find a cure which I hope becomes a reality someday soon. We are so very thankful to the dbaf and all they do everyday.

Hi, my name is Terri-Lynn Hart and my 14 year old daughter is Grace. Grace has Diamond Blackfan Anemia. She is transfusion dependant and on chelation daily. Because of the Diamond Blackfan Anemia Foundation I am kept up to date on all new things going on in the medical world. I have learned so much because of this foundation and its amazing to know I can reach out for support at any time. Being from Newfoundland, Canada we are quite isolated. As well there are only 2 known cases in my province. As a parent of a child with DBA it is so reassuring to know that this foundation is there and I'm not alone. I believe because of DBAF my daughter is striving. DBAF is a wealth of knowledge that I can bring back to my daughters doctors so they can help her live life with DBA to the fullest. Thank you so much DBAF for all you do for our DBA family.
Sincerely
Terri-Lynn & Grace Hart