My Nonprofit Reviews

Thank you for your support of a travel scholarship. We were able to attend the Rare Patient Summit 2018 in Irvine, CA. It was an amazing experience. The summit offered so much more than I expected. The educational sessions were informative and easy to understand. I actually realized how much as a caregiver, I forget about “caring” for me. I left the summit knowing that it is okay to show your emotions, to ask for help, think positive and stay strong. I learned from and connected with others that are going through the same struggles. We are not so rare after all. Global Genes' Rare Patient Advocacy Summit was a very rewarding experience.
I truly believe that God has sent angels from heaven to help parents and caregivers for rare disease patients. Every team member from Global Genes is an angel from heaven on earth. Thank you for your dedication, hard work and commitment to the rare disease patient community.