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Review for Alternating Hemiplegia of Childhood Foundation Inc, Southfield, MI, USA

Rating: 5 stars  

AHCF has been a lifeline for my family dealing with a rare (1 in a million) neuro disease when even the big research hospitals near us knew very little about how our life would change caring for our beautiful daughter diagnosed at 2 yrs with Alternating Hemiplegia of childhood.

They keep updating the website making it more and more user friendly as well as keeping updating articles and research information links on the website. It is maintained and updated by parents of children with AHC making it even more useful for other families as well as doctors who might not know much about this very rare condition.

Thank you AHCF for all you do.

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