My Nonprofit Reviews

AHCF has been the most valuable resource for our whole family over the last 23 years as we navigate this complex journey with our daughter. We’re so grateful to have this community to rely on for AHC because it is so rare and not yet well understood.

This family driven group continues to be critical to our family as we navigate the world of rare disease. This website keeps us up to date on current research, topics of interest and other families on our journey. The fundraising by our families has done an amazing job to attract and drive research into our children’s most challenging condition.

AHCF has been a lifeline for my family dealing with a rare (1 in a million) neuro disease when even the big research hospitals near us knew very little about how our life would change caring for our beautiful daughter diagnosed at 2 yrs with Alternating Hemiplegia of childhood.

They keep updating the website making it more and more user friendly as well as keeping updating articles and research information links on the website. It is maintained and updated by parents of children with AHC making it even more useful for other families as well as doctors who might not know much about this very rare condition.

Thank you AHCF for all you do.