My Nonprofit Reviews

I currently volunteer with Rare Genomics Institute as a member of their Patient Advocacy Team. Since joining the team, I've been involved with fulfilling work that directly impacts patients. We are currently at the advent of genetic technology development and at this point in time, clinical next-generation sequencing is becoming a reality for rare disease patients. However, many patients/families do not know how to go about accessing these technologies in their efforts to find a diagnosis. As a volunteer at Rare Genomics Institute, I've seen our Patient Advocacy Team bridge that gap for patients and as a result, have helped several families reach a diagnosis after years of searching. Through witnessing the impact of Rare Genomics's work on patient families, RGI has far exceeded my own expectations as a volunteer.