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Review for The Myositis Association, Alexandria, VA, USA

Rating: 5 stars  

When I was first diagnosed with myositis eighteen years ago, The Myositis Association was instrumental in helping me to understand more about this rare disease. As a result, during my numerous emergency room visits, I was able to explain the disease to both doctors and nurses who had no knowledge about myositis. I had to spell it and explain it. In addition, through their Keeping In Touch (KIT) organization I was able to connect with another myositis patient which helped close the gap of isolation I felt. An excellent organization which provides a wealth of information about myositis.

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