My Nonprofit Reviews

Rare Genomics Institute has been very helpful to our family. They helped us get testing for our daughter which we wouldn't normally have been able to have done. They always answered questions quickly and thoroughly. They made my daughter feel special by helping her get a Rare Bear, which she loves dearly. Shortly after testing, we weren't able to find a diagnosis. Now, a couple years later, our daughter's doctor was able to re-analyze the data and think they've found a diagnosis. It's not the original thing they were looking for but still a diagnosis to explain some of her symptoms.