My Nonprofit Reviews

I am a volunteer for Rare Genomics (RG). Specifically I work on the social networking side of Rare Genomics. Being part of RG has shown me how much RG cares about the rare disease community. It doesn't just start and end with crowdfunding or putting families in touch with a Rare Geneticist so that their undiagnosed child can finally have an answer to their complexities. RG gives patients a voice. With a voice comes more access to answers and technologies to bring upon the necessary help. RG is an intricate network of groups of people with different backgrounds and roles coming together to solve one rare disease case at a time. RG is unique because it provides all the needs for a rare disease patient: a voice, a diagnosis, a network of people who can help, and a story. RG will continue to be a company I volunteer for as the years pass because their cause is just as great as their impact.