My Nonprofit Reviews

The Arre Foundation is so important for families with children with an ASXL mutation, because they bring researchers and so knowledge together which is very important to understand more about these syndroms! The first conference in July 2018 was a very big succes and brought families from all over the world toghether. Such a meet-up is of great value for all the people who are a part of the children with these rare mutation, because so little is told in literature and this way we can all learn from eachother! Therefore it’s so important that this Foundation excists, so if you are thinking about foundraising, please think about the Arre Foundation!

Thank you!

Suzanne Driessen
Coen’s (Bohring Opitz Syndrome) mom.