My Nonprofit Reviews

Br2ndo
Review for Cornelia de Lange Syndrome Foundation, Inc., Avon, CT, USA
The world met Hunter shortly after he met the world. Blond and handsome he was - and is. Largely unnoticed were his somatic CDLS phenotypes, due largely to a mutation in the NIPBL gene residing within Chromosome 5. These were corrected by surgeons. But Hunter's speech and coordination are compromised, requiring a lifetime of therapy and adjustments.
He remains a beautiful young man. His future depends upon the empathy and competence of social workers, well-intended, but a hit or miss proposition, and on this: the largess of citizens who can fund genetic research, science! We, and I and his caring family, await the day when the CDLS Foundation periodical is choked with reports of research findings, and new techniques for managing daily living can be found on the back-cover. Thankfully, the Foundation concentrates all efforts large and small. But It is time to turn up the Bunsen burner - CDLS needs millions, far more desperately than your college or library or local club, all of which woo us with manifest prizes and publicity, elevating our resume's and obituaries.