My Nonprofit Reviews

My daughter Bora was born on January 11, 2014 at John's Hopkins All Children's Hospital in Florida. Right after her birth she was transferred to NICU where she was diagnosed with CdLS. She weighted 4 lb and 3 oz and was 18 inches long. 2 months after, we took her home for the first time and our beautiful journey begun. She went through ups and downs, fought so hard to get better and progress. But, unfortunately she couldn't win her last battle and left us on July 30th, 2018. She was a loving and a very special child with a very special gift. She taught us how to love unconditionally, patience and to see beyond her condition. She was perfect in her own way and she was perfect to us. She will always be loved and will always be missed. We will always remember her as our loving and caring baby as she became our guardian angel in Heaven.