My Nonprofit Reviews

I am 64 years old and have had MdDS (on & off) since 1992. The first episode occurred immediately following a 10+ hour airplane ride. For the first 10 years, with numerous onsets of MdDS after flying, there was no Dr. who was able ro make any diagnosis. Most treated me as if It was just my imagination. Finally, in 20005, an ENT suggested that it might be Mal de Debarquement. She did not even know how to pronounce or spell it but remembered hearing something about it in medical school and it had something to do with sailing. She knew nothing more about it. With that little bit of information to go on I started my own research & found the MdDS Foundation website. I knew instantly that MdDS was what I had been suffering from. Unfortunately, 26 years later, most doctors do not know anything about it. Don’t know what I would do without the information & support that the MdDS Foundation brings to those of us who get to live with MdDS. I consider myself to be one of the lucky ones who does go into remission but, MdDS is easily retriggered with airplane travel or car rides and episodes last months (6-9) not weeks and symptoms on on the higher end of the scale. Unfortunately, MdDS is my new normal.