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mirandamaelyn

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1 reviews

Review for MdDS Foundation, Audubon, PA, USA

Rating: 5 stars  

The MdDs Foundation has saved me. In November of 2017 I took a trip from my small town in Kansas to Las Vegas, Nevada. After a few days of airplane rides and countless elevator rides my world started swaying. It felt like the floor dropped beneath me. As I started to walk it felt like I was walking on a trampoline. It has been 9 months, and the swaying, bobbing, and rocking hasn't stopped. It is hard to concentrate, get out my thoughts, and just purely function with the physical and mental pain. I have gone to countless specialists including neurologists, my primary care doctor, a neurotologist, and several ENT's. They have all told me, "I can't help you. I think it's anxiety." A couple weeks ago my mum was doing her last resort research she could and came across the MdDs foundation site. She called me and said, "This is it. This is what you have." After more research on the site, getting in the support group on FB, talking to my physical therapist, and calling the doctors at Mount Sinai in New York it was conclusive that I was a candidate for the treatment. I finally have a name for my diagnosis. At 23 I didn't imagine I'd have a rare disorder that not many doctors know about, but honestly if it wasn't for this foundation I don't know if I would have ever found an answer or treatment. The site was able to give some information about possible treatment in New York, which is where I'll be headed in a few weeks. The foundation has inspired me so much that I am currently working with them on doing an "Instagram takeover" while I'm there to spread awareness, the process, and the life in the day of MdDs. I am also in contact about some other special projects. I just want people to know they're not alone, and this is exactly what this foundation showed me. MdDs Foundation, thank you.
-Miranda McComber, 23

Role:  General Member of the Public