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tlrm1985

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1 reviews

Review for MdDS Foundation, Audubon, PA, USA

Rating: 5 stars  

My daughter (Miranda) started illness journey in November 2017. After tons of doctor appointments and tests, we were told no one could do anything for her. I was NOT accepting that answer. One late night, I started researching rare disorders that make someone feel like the are constantly swaying, bobbing, rocking, falling. Up pops MdDS. After digging deep into all of the information on the MdDS foundations website, it was like I had my answer. We are taking a journey in October to go for treatment at Mount Sinai in New York. While the prospect of hope is there, the journey for her will be a large feat. But, like she does everything in life, she is taking it one day at a time and conquering all her fears. I am just so thankful for the foundations website. If it would not have been for finding it, I feel we would have no answers. Thanks to you all for getting the information out to the public and being there for people when doctors could not.

Role:  General Member of the Public