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joyseven

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Review for MdDS Foundation, Audubon, PA, USA

Rating: 5 stars  

The MdDS Foundation is made up of extremely hard-working, and dedicated volunteers, most of whom suffer from this incredibly debilitating disorder themselves.

I was lucky to get a MdDS diagnosis from a doctor 10 days after my symptoms began - the ENT who diagnosed me referenced the MdDS Foundation website in order to help diagnose me.

MdDS is so much of a rare disorder that it hardly even categorizes as one, so the need to spread awareness is crucial. The MdDS Foundation works tirelessly to help achieve that goal.

Role:  Volunteer