My Nonprofit Reviews

Peter van L. - charity reviews, charity ratings, best charities, best nonprofits, search nonprofits

Peter van L.

46 profile views
1 reviews

Review for Barth Syndrome Foundation Inc, Larchmont, NY, USA

Rating: 5 stars  

The Barth Syndrome Foundation is a true example of how groups for rare diseases should be run. The way they bring patients, families, doctors and scientists together is unique and the amount of knowledge gathered in its mere 18 years of existence is mind blowing.

Role:  Client Served