My Nonprofit Reviews

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1 reviews

Review for Congenital Heart Defects Families Association, Kansas City, MO, USA

Rating: 5 stars  

About 3 1/2 years ago my wife and I went to our ultrasound at 22 weeks. It was then that we found out that our son was going to be born with heart defects. We were scared and felt very alone. Of course our family and friends offered support but they weren't in our shoes and didn't truly understand what we were feeling. After searching the internet and talking to people the only organization we could find was CHD Families Association. I talked to Valarie Rexin and she could totally relate to what we were feeling. When we were at the hospital she sent us a couple of bracelets and a blanket. Even though she was a couple of thousand miles from us at least we knew there was someone in the world who knew what we were going threw. It may not seem significant to some but we didn't take those bracelets off until our son was a year old. The year following our son's birth a new nonprofit organization in our area started up and we belong to it but Valarie gave us the support we needed when we needed it. She is very active with her organization, in fact the president of the group we associate with knows her and has worked on the quilt project with her in the past.

I've personally experienced the results of this organization in...

Gifts we received.

If I had to make changes to this organization, I would...

I keep up on them more than once a year to see what they are doing. They have some nice things for sale on their site. They are doing a wonderful job and deserve all the support they can get.

What I've enjoyed the most about my experience with this nonprofit is...


The kinds of staff and volunteers that I met were...


If this organization had 10 million bucks, it could...

provide the loving support families need. I can't imagine all they could do with that much money but I know it would be put to good use.

Ways to make it better...

I lived near them but I was a long way away and they still touched our hearts.

In my opinion, the biggest challenges facing this organization are...

continued funding to help meet the growing needs of families with children who have heart defects.

One thing I'd also say is that...

we appreciate how they reached out to us even though we were so far away. I think Valarie understood the helplessness we felt.

How frequently have you been involved with the organization?

About once a year

When was your last experience with this nonprofit?


Role:  Client Served & I received support.