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evf1961

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1 reviews

Review for The National Organization For Rare Disorders, Danbury, CT, USA

Rating: 1 stars  

I had the honor of joining the 2018 boston marathon as a member of the NORD team. My daughter was diagnosed with Kawasaki disease decades ago so diagnosis of rare diseases has a special place in my life.

I had the chance to meet NORD seniors and was very impressed with their professionalism and desire to help as many people as possible.

Role:  Donor