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tpm1

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1 reviews

Review for In Need of Diagnosis, Orlando, FL, USA

Rating: 5 stars  

Without a diagnosis, there is no treatment, no support, and often no insurance payment. These peopple often have no place else to turn. With few resources, founder and volunteer Marianne Genetti has been helping to work miracles for people who have no other options. There is no medical specalty for diagnosis, so many people have no idea where to turn when doctors don't know why they are ill. I came to INOD after dealing with my own illness that took years to diagnose, and three family members who had difficult diagnoses, one not yet diagnosed. Marianne Genetti (who also has an undiagnosed illness), founder and driving force behind INOD, spent time and her own funds to selflessly help others with what she has learned in dealing with her own illness. She is empathetic and unafraid to approach anyone she thinks might help her clients. She has helped people get access to computerized diagnostic programs. The only other program in the United States, the National Institutes of Health Undiagnosed Diseases program, has a limited scope and takes a very small fraction of those that apply for help. Marianne will do all she can to help anyone who contacts INOD. She is tireless in exploring funding opportunities for INOD, which now has no regular funding, but is accomplishing miracles on a shoestring budget.

I've personally experienced the results of this organization in...

support and guidance in delaing with my own and family members' illnesses.

What I've enjoyed the most about my experience with this nonprofit is...

The tireless work of Marianne Genetti in helping others.

The kinds of staff and volunteers that I met were...

mostly dealing with undiagnosed illness themselves, limiting the resources they can give.

If this organization had 10 million bucks, it could...

change many people's lives for the better.

How frequently have you been involved with the organization?

About every month

When was your last experience with this nonprofit?

2010

Role:  Board Member & Explored ways to extend help to people with undiagnosed illness.