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Review for Jacob's Cure, Inc., Rye, NY, USA

Rating: 5 stars  

Jacob's Cure is a caring and selfless organization that is devoted to finding a cure for this horrific disease. The inspiration that Jordana and Jacob's Cure has, allows me to continue to have hope that one day, soon, a cure will exist and hopefully help my 11 year old daughter and every other child affected with Canavan Disease.

I've personally experienced the results of this organization in...

I have watched Jordana and Jacob's cure speak before congress requesting funding for this "Orphan Disease". Her delivery was eligant and diligent in pertraying the need for research funding. Jacob's cure has been so inspirational.

What I've enjoyed the most about my experience with this nonprofit is...

Knowing that my family is not alone with suffering from this horrific disease and learning that Jacob's Cure is going above and beyond all possibilities to reach the goal of curing Canavan Disease.

The kinds of staff and volunteers that I met were...

Amazingly nice, courageous, caring and ambitious.

If this organization had 10 million bucks, it could...

Pay the researchers and lab expenses that is needed to cure Canavan Disease. It is so upsetting to know that money is the only road block in reaching this goal at this point. They are so close, but money is what is slowing them down.

How frequently have you been involved with the organization?

About every six months

When was your last experience with this nonprofit?


Role:  Client Served & I have a daughter with Canavan Disease.