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Review for The Cluster Headache Support Group, Inc., Tucson, AZ, USA

Rating: 1 stars  

At first I thought this group was so supportive and helpful. Occasionally I watched them ban someone for subjects they didn’t like. I said nothing. Thought they had done something wrong & probably deserved it. Unkind of me, I know.
Then they wouldn’t allow sufferers who didn’t speak English to post, even though there is auto translate feature and other sufferers who spoke their language. Cluster Headache is not exclusive condition only for English speakers. I still said nothing, even though little things I saw bothered me.
Then they banned me, without message or notice, for talking about Vitamin D3. Yes, you heard me, D3. No warning, nothing illegal. The same D3 they have listed in their own files.
I understand and respect rules for safety, but I can not abide censorship. They have a section justifying and denying censorship in their files. I wondered, at the time, why they felt the need to justify themselves & deny it. Now I understand why.
Sufferers need to toss ideas around with painful, often chronic, conditions. Some work, some don’t. Not every idea is automatically illegal. In my opinion, if rigid oppression of ideas and pharma group think is what you are looking for, this group is for you. If you need kindness without judgement or censorship, I’d look elsewhere. Ty for reading this and may you be pain free.

Role:  Client Served