My Nonprofit Reviews
hungrydawg1
539 profile views
1 reviews
Review for 1p36 Deletion Support & Awareness, Bend, OR, USA
The 1p36 organization is a fantastic network of families. This network not only provides support and education..but more importantly provides HOPE. This is especially important for newly diagnosed families. The annual conference, quarterly newsletters and yahoo support group are wonderful tools to help families with their journey of having a child with special needs.
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I've personally experienced the results of this organization in...
My everyday life. I look forward to reading about other 1p36 children and their parents and how they deal with certain situations. It is therepeutic to connect to those who understand my same situation as a parent.
How frequently have you been involved with the organization?
About every week
When was your last experience with this nonprofit?
2010
Role: Volunteer & I helped organize 2009 conference in Indianapolis and run a variety of fundraising events including annual scrapbook and backyard movie eventsook.
