My Nonprofit Reviews
renee11
409 profile views
1 reviews
Review for Congenital Heart Defects Families Association, Kansas City, MO, USA
My son was diagnosed in-utero with Tetralogy of Fallot. I found CHD Families through Children's Mercy and attended support group meetings before he was born as well as during his first year. I really enjoyed getting to know other CHD families and I learned a lot about surviving hospital stays, advocating for my child, and generally what to expect with a CHD child. CHDFA sent us a care package during our hospital stay including a handmade blanket which made us feel very welcome.
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I've personally experienced the results of this organization in...
helping to raise money for CHD research through the KC Heart Walk.
The kinds of staff and volunteers that I met were...
VERY friendly and helpful
If this organization had 10 million bucks, it could...
reach every family with a CHD kid
How frequently have you been involved with the organization?
About once a year
When was your last experience with this nonprofit?
2008
Role: Client Served & I received support when my son was diagnosed with a heart defect.
