My Nonprofit Reviews
janglemyer
Review for Oxalosis and Hyperoxaluria Foundation, New Paltz, NY, USA
I suffer from Primary Hyperoxaluria. The incredibly hard work done by the folks at the OHF have raised thousands of dollars to seek out a cure for this devastating illness. It is not a well known disease, but this charity does a great job of not only raising awareness in the community, but is working hard to find a cure. As someone who has suffered and, thanks to a kidney and liver transplant, is recovering from this disease, I know how depressing it can be when faced with a diagnosis of Oxaluria. The folks at OHF do a great job of helping oxaluria patients stay in touch with each and help answer questions about their problem. Through this network we have formed an excellent international support group. They also work closely with doctors and scientists to find a cure.
More Feedback
I've personally experienced the results of this organization in...
many ways, but mainly it helped me connect with a young girl recently diagnosed with Oxaluria. I have spoken with her (and others) and let them know not to give up hope, you can get through life with this affliction.
If I had to make changes to this organization, I would...
none, besides finding a cure!
What I've enjoyed the most about my experience with this nonprofit is...
getting in touch with other suffering form this affliction.
The kinds of staff and volunteers that I met were...
great group of hardworking folks.
If this organization had 10 million bucks, it could...
find a cure.
Ways to make it better...
none. great group of hardworking folks.
In my opinion, the biggest challenges facing this organization are...
the fact that it is not a well known disease.
One thing I'd also say is that...
this is a great program that would do all the right things to help folks with any donations it receives.
How frequently have you been involved with the organization?
About every six months
When was your last experience with this nonprofit?
2009
