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lradhuber

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1 reviews

Review for In Need of Diagnosis, Orlando, FL, USA

Rating: 5 stars  

I literally owe my life to INOD and Ms. Marianne Genneti. I have a rare disease called Myelofibrosis with Mieloid Metaplasia. This disease causes the Bone Marrow to loose the ability to produce blood cells in proper amounts. Three years ago I was evaluated for a Bone Marrow transplant since it looked it was the last resort left. While looking for a donor, my doctor recommended I tried a combination of two meds. Fortunatly, they worked and I no longer needed a transplant. After two years of taking those meds, they stopped working. My Doctor had no idea why. I contacted Ms. Genetti and she started asking me numerous questions. She kept asking and asking different things, what had changed, etc. Next day was a Saturday in which I prepare my pill boxes for the week. All of the sudden because of Ms. Genetti's questions I realize I was taking one quarter of on the prescribed medications. I would have ended up again in the Bone Marrow Transplant list. Bone Marrow Transplants, in the best Hospital in the world for transplants , Fred Hutchinson in Seattle, WA have only a success rate of 80%. Wouldn't you agree I owe my life to INOD and Ms. Genetti?

I've personally experienced the results of this organization in...

my health situation

What I've enjoyed the most about my experience with this nonprofit is...

Ms Genetti's caring and helpful ways.

If this organization had 10 million bucks, it could...

Help a lot of people!

How frequently have you been involved with the organization?

About every month

When was your last experience with this nonprofit?

2010

Role:  Client Served & I contributed a small amount of money, but Ms Genetti knows I can volunteer by fixing INOD's computers software if she needs it.