My Nonprofit Reviews

Our story with Multiple System Atrophy began in late 2005 after my wife was diagnosed with MSA at Mayo Clinic. As MSA patients and caregivers know, this rare disease is devastating to the patient and family, and since it is quite rare, there are few resources or support organizations available to provide the much needed support for MSA. That's where the MSA Coalition meets a real need for the MSA Community.

After working with the MSA Coalition throughout 2016, especially at the annual national patient and caregiver conference, in 2017 I joined the Board of Directors. This organization is 100% volunteers - all who have direct links to MSA, having lost our spouses, parents or siblings to this disease. Whether the Board is planning for the annual conference, providing research grants, sponsoring MSA Advocacy meetings, providing key information to patients via the MSAC website, talking to patients and caregivers over the support hotline, or sponsoring important meetings with a broad cross section of research scientists and clinicians from the MSA worldwide research community - the best interests of the patients and their families are always the top priority.

Beyond the Multiple System Atrophy Coalition's financial transparency and fiscal responsibility, supporters should know this Board consistently leads with integrity and a laser focus on the patients' best interest at heart ... because we care about MSA patients and caregivers who are fighting the same battle that we fought.