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jc3

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1 reviews

Review for In Need of Diagnosis, Orlando, FL, USA

Rating: 5 stars  

On July 19, 2009, I was dealt one of the most serious blows of my life. The problem was that not one of the 12 physicians/specialists I saw for my ongoing "mysterious" abdominal pain and dizziness had a clue of what was happening to my body. I was sick, very sick. I am a father, a son, a school teacher and football coach. However, I just could not function any longer with the responsibilites I had. I just knew that this was my time to die. The abdominal pain and dizziness were just unbearable. I could not get out of bed. I went from a robust, healthy 205 pounds to a thin, sickly 183 within a matter of months. For 7 months, I had no diagnosis. To make matters worse, my wife was pregant and gave birth to our beautiful baby boy; there were complications. He was born with a birth defect and he required (and still needs) hospitalization and surgery. I still wonder what I did to deserve all this destruction in my life. My blood work for the most part was fine, no red flags, test after test after test after procedure: normal. Medication after medication and nothing. I did not feel good at all. I remember one night in particular. My wife was 7 months pregnant. The dizziness and gut pain were so intense I passed out momentarily. My wife was in tears when I woke up and I remember telling her "end it babe, please end this...I don't want to live like this anymore". I endured that night and so many like that. One doctor I went to even told me "I cannot help you sue anybody or get disability; what you need is psychotherapy". I knew then that my family and I were alone in this battle. I used up my credit cards, dug deep into my savings...using them on accupunture, alternative medicine doctors and so many other. My church pastor prayed for me and my family non stop. I even went as far as emailing and calling doctors from all over the country and even Australia. Most did not and could not help (because of ethic issues). With my back and life against the wall, I don't know exactly how I came across INOD and Marianne Genneti; but I did. I remember giving her some details about my condition and then she pointed to some information about bacterial overgrowth in the intestines. I researched it further and after months of suffering and pleading with a gastro, hydrogen breath test was positive. By this time I had talked to a physician from Australia who also indicated that SIBO may be the culprit for my symptoms and post infectious IBS. Within a few weeks of starting antibiotics, I felt some improvement; not total but some. I could go on and on... but now I found a good gastro in the states that knows about the condition, is approaching it the right way and now I have a diagnosis: Post Infectious IBS. I feel about 70 % but there are times when the stomach/gut pain and dizziness are intense that I have to pause and hold on. Marianne pointed me in the right direction. She even helped me with a powerpoint that I presented to doctors try to sort my condition. A simple email and she was willing to help and of course no charge. When doctors asked me for money and no results, marianne simply gave of herself without expecting anything in return. INOD is a damn good, honest group with a fine leader at the helm. They are not in the business of diagnosing diseases; simply helping those in need, especially when doctors give up on patients with hard to diagnose illnesses.

I've personally experienced the results of this organization in...

yes

How frequently have you been involved with the organization?

About every month

When was your last experience with this nonprofit?

2010

Role:  Client Served & I found a sense of direction when no one else had a clue of what was happening to my body.