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Rebecca Kaufman R.

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1 reviews

Review for NATIONAL TUBEROUS SCLEROSIS, Silver Spring, MD, USA

Rating: 5 stars  

Being in Alaska, it's easy to feel isolated and difficult to find adequate resources and care for my daughter with TSC. Enter the TS Alliance. They put me in touch with other parents and introduced a support network of amazing people to help. I would be lost without their resources, knowledge and most of all EMPOWERMENT to make you feel you have a real voice in helping those affected with TSC.

Role:  Volunteer