My Nonprofit Reviews
rsmith12
177 profile views
1 reviews
Review for Alagille Sydrome Alliance, Washington, DC, USA
I'm the mother of teenage twins, one who has ALGS. The ALGSA was a lifeline for me when the kid were infants. Finding information about ALGS is very difficult and searching on the internet led to many scary unknowns. Thank you, ALGSA, for providing relevant information to families and for all you've been doing for families for the last 25 years!!
Role: Board Member