My Nonprofit Reviews

Ive grown up with Alagille Syndrome and until I heard of the Alliance I was so alone and isolated. The Alliance connects you to information and people and gives you more support than you can imagine. It’s an incredibly dedicated team of people that believe in vision of supporting and caring for people. I live in India, a country with so little awareness of rare diseases and even less patient support. The Alagille Syndrome Alliance gave me the support I never had. That’s how I got into working with the Board of Directors. I wanted to give back to them and to my ALGS family.