My Nonprofit Reviews

wildride
Review for In Need of Diagnosis, Orlando, FL, USA
My last wildride was 4/23/06, from an 8 year old wild stallion that i rescued, he caught me off guard an bucked me forward an the back of his head smacked the front of my face and skull and knocked me out, and while i was unconscious he bucked me off and i landed on top of my head breaking my neck C4,5,6,7, my diagnosis is a C4 quad incomplete. So far i have beat all the odds of what the Dr's at the U.W. Madison Hospital in Wisconsin say i wasn't going to be able to do. And that is i have regained bowel & bladder functions and i can ambulate with a 4 wheel walker, and was walking up to half a mile a day, but other problems have become. I was suffering from a low back pain that i was telling the U.W. Dr's about since 5/2006 and they where telling me my pain was coming from my cord injury, but 11 months later in 4/2007 i found out from a local Dr i had a herniated disk all that time. I was given an incorrect diagnosis by the U.W. Dr's, and being that i lived 98 miles from the U.W. hospital my local Dr's suggest i keep working with the U.W. spine surgeons, so i did and In 2/28/08 the spine surgeon from the U.W. told me i needed a L5 S1 discectomy. I let them do the surgery and my life has been going down hill ever since, the pain has only increased and my condition worsens daily, and my bowels are a constant struggle every day, then 7/1/08, they removed my gallbladder and appendix, then i was T-Boned by a Jeep SUV who ran the STOP SIGN 7/31/08. God must have a darn good reason/plan for me to keep me alive through all this. I have been in a desperate struggle searching multiple Dr's to find the reasons of my pain, and i'm given the answers of, i think your pain is/or i have no explanation for your pain and they send me and my problem to someone else, and its the same story and so on. And then i stumbled upon INOD, Miss Marianne, and she talks with me over the phone, a real voice, and someone who listens and understands, and i could feel by the truth and honesty of her voice that she really cared. And then she sent some information about having my blood checked for a vitamin deficiency, and explaining to me about all the accidents I've been in, an the shock caused to my body amongst other things, that a lot of my pain problems can come from an off balance of vitamin's in the blood. I wish i would have found INOD earlier, because maybe my L5 S1 Discectomy wouldn't have had to be done, and not one of the Dr's that i have visited or the U.W.Madision Dr's ever looked at the blood, or even suggested such a test, and to think this blood test is one of the simpler test to try first. I will be going out of state the first week in August 2010 for a 4 day intense evaluation to a spinal cord specialist and have relayed the blood test information about the Spectra cell, and the folks there found this information very interesting and are sharing this information with others in this Hospital. I feel INOD is on the right track by having the blood checked first, it is a good first step to check out first, and would be a wise thing to discuss with your Dr in a visit. Thank You for all your help. from the Proud Dad of a U.S. Marine who just return home safely from Afghanistan. Semper Fi Ray
More Feedback
I've personally experienced the results of this organization in...
they were very informative of things that maybe should be looked at first, before bigger and larger more expensive test are researched.
What I've enjoyed the most about my experience with this nonprofit is...
to talk with a real live person,
The kinds of staff and volunteers that I met were...
real
How frequently have you been involved with the organization?
One time
When was your last experience with this nonprofit?
2009