My Nonprofit Reviews

The TSC Alliance has a mission to not only find a cure, but is always helping families navigate their difficult journey. They encourage community gatherings to minimize the feelings of isolation. They present medical updates, resources, as well as help with advocacy in the schools. Government advocacy for research funding is also a key component of the TSC Alliance. And most importantly, they are committed to finding a cure for the complex condition of tuberous sclerosis complex.

I have been involved in TSC Alliance since 2012. The organization is filled with amazing staff members and volunteers, all eager to help. Their mission is genuine and they are so supportive above and beyond what one might expecr. While no one wants to have a challenging disease in the family,I am proud to be connected to TSC Alliance.

TS Alliance is an incredible organizationt! Not only do they provide help and guidance to families as they suggest appropriate resources, but they have helped me feel like I can help our grandson who has TSC. While I can not control any health related issues, it has given me a place where I can feel I am making a difference , that ultimately will help D, as well as other patients and. families facing this challenging disease. Through TS Alliance, we are able to provide educational programs, fundraising events, and social gatherings, where families are able to feel less isolated and gain support of others. While I sincerely wish D. was never diagnosed with TSC, I cannot thank TS Alliance enough for all they do, nor could not imagine a better organization With which to affiliate.