My Nonprofit Reviews

A good friend of mine received a very somber pronostic when diagnosed with amyloidosis: not curable and 2-3 years left. Thanks to this support group (found by googling) , I soon learned that, on the contrary, many people had survived this rare disease and, even better, thanks to a quick reply from a wonderful lady responsible for this support group, my friend was put in contact with a local survivor of the disease. This precious contact meant hope again for my friend as he was given tons of info on treatments (etc.) and names of local experts that he could contact for professional help. I am astonished by the fact that some medical professionals are unaware that they do not have the full picture of a disease... in fact, no one has a full picture of any disease. This support group is absolutely VITAL. Thank you to the wonderful people who run it and thank you to the wonderful people who offer their experience and guidance to their needy peers.