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kenshirt

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1 reviews

Review for 1p36 Deletion Support & Awareness, Bend, OR, USA

Rating: 5 stars  

My wife and I have a 4 yr old son with 1p36 Deletion Syndrome. 1p36 Deletion Support & Awareness has been wonderful in providing both informational and emotional support. It is great to know that you have a family that you can talk to that can truly understand the things you are going through.

How frequently have you been involved with the organization?

About every week

When was your last experience with this nonprofit?

2010

Role:  Board Member & Helped establish 1p36 Deletion Support & Awareness as a nonprofit.