My Nonprofit Reviews
kenshirt
554 profile views
1 reviews
Review for 1p36 Deletion Support & Awareness, Bend, OR, USA
My wife and I have a 4 yr old son with 1p36 Deletion Syndrome. 1p36 Deletion Support & Awareness has been wonderful in providing both informational and emotional support. It is great to know that you have a family that you can talk to that can truly understand the things you are going through.
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How frequently have you been involved with the organization?
About every week
When was your last experience with this nonprofit?
2010
Role: Board Member & Helped establish 1p36 Deletion Support & Awareness as a nonprofit.
