My Nonprofit Reviews
eamurphy20171
Review for Lupus Foundation of Greater Washington, Washington, DC, USA
The Lupus Foundation of DC MD VA (LFA-DMV)is literally a life saver! the mission and purpose of the Foundation is to provide education and patient services to individuals with lupus--an incurable auto-immune disease. As there is no cure for the disease it is essential that patients ar diagnosed as early as possible and learn quickly how to improve their quality of life. The foundation pulls together physicians, families, government resources,and researchers and provides FREE support groups, workshops, symposia, web chats and patient navigator services to help patients live longer with this diabilitating disease. My sister's life has certainly been extended because of the information and guidance she has received through the foundation. Every day makes a difference.
More Feedback
I've personally experienced the results of this organization in...
the lives of patients and their families. My sister has survived far longer than she would have; my co-worker is learning how to live with the disease, and a an acquaitance found a diagnosis.
What I've enjoyed the most about my experience with this nonprofit is...
making a difference and literally helping our patients live longer more productive lives.
The kinds of staff and volunteers that I met were...
passionate, committed and knowledgeable.
If this organization had 10 million bucks, it could...
help individuals get diagnosed more quickly. Education is critical in the fight against lupus. Women of color are most affected by lupus and they and their doctors are ignorant of the disease. Every day undiagnosed is critical to a longer life.
When was your last experience with this nonprofit?
2010
