My Nonprofit Reviews
Review for SADS (Sudden Arrhythmia Death Syndromes) Foundation, Salt Lake City, UT, USA
On April 7, 2009 my life was changed forever. That is the day my 3 yr. old daughter, "George" (Cecilia Kay Balma), just stopped. It was the middle of the afternoon, on a regular day, my 5 yr. old son said George was pretending to be asleep on the kitchen floor. My two other daughters and I went to 'wake George up'. We use to be a very playful family. It only took a second for my oldest daughter and I to realize something was wrong. My 10 yr. old called 911. I held my child and talked to the emergency operator. When we reached the hospital, there was already a priest in her room waiting for us. I didn't look at him. Within seconds my husband was in the room. We watched, helplessly, while the doctors tried to save her life. They were unsuccessful. No one could tell me what happened to my baby. Not 911, not the paramedics, not the doctor or hospital. It took the coroner to diagnose my daughter. Death by Sudden Cardiac Arrest due to an undiagnosed heart condition. I couldn't understand how something like this could happen to my family, to my child. I wanted to know something, anything. The coroner diagnosed my daughter. She had right ventricular displasia, a form of SADS. I couldn't understand why I didn't know and began a downward spiral into a horrible depression. During the days I spent locked in my house I began to research this condition. The more I learned the angrier I became. I started very slow, asking for a small amount of literature at first. The reaction I got from the community has lit a spark. No one knows. I went to the Health Dept., W.I.C, and Medicaid Office. I hung posters in the library, courthouse, and grocery stores. I just kept telling anyone who would listen. I am proud to say that I have a date with the School Board on 6/21 to ask that they change the county wide physical forms. I will never stop telling. My family will never stop telling. SADS helped me find a way to be a mother to my child in Heaven. While I could not save George, together we can save someone else's Angel.
I've personally experienced the results of this organization in...
I have experienced the results of this organization in so many ways. Mostly when I see the pride in my children's eyes when I update them on my activities.
How frequently have you been involved with the organization?
About every month
When was your last experience with this nonprofit?