My Nonprofit Reviews
meredith5
Review for Preeclampsia Foundation, Melbourne, FL, USA
In 2007, we lost our twin baby girls due to preeclampsia and HELLP Syndrome. I was 24 weeks pregnant when I became suddenly very sick. Fortunately, I made it through, but our daughters were just too little and lived only an hour after birth. After that loss, I spent so many hours on the internet searching for answers. What happened? Why? How could I make sure it didn't happen again? I found the Preeclampsia Foundation and found information and amazing support. Other women who were going through or had gone through what I was in the middle of. It was an enormous comfort. Today I volunteer with them coordinating the Irvine, CA Promise Walk for Preeclampsia and the Orange County Group for the Preeclampsia Foundation. We are trying to raise awareness, support other survivors and victims' families as well as generate research funds because currently there is no cure except delivery and that's just completely unacceptable. It may have given me a chance, but delivery was a death sentence for my daughters.
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I've personally experienced the results of this organization in...
the amazing support I've received. When I was pregnant with my son after having had pre-e with my girls, I found women who were encouraging and information about my disease. My work with them also helps me to feel that my daughters are still with us.
If I had to make changes to this organization, I would...
make it bigger! I want them to have money coming from everywhere so that they can find a cure to this disease, find a cause and give me answers. I want more people to know about pre-e so that they get medical attention when needed and save lives.
What I've enjoyed the most about my experience with this nonprofit is...
the amazing women I've met along the way. They are all women who have walked in my footsteps in someway or another. It's a bond none of us want, but one that comforts me immensely.
The kinds of staff and volunteers that I met were...
Dedicated, passionate and willing to dedicate numerous hours of their time in order to further our mutual cause.
If this organization had 10 million bucks, it could...
Amazing. I'm sure they would do wonderful things with it...research, awareness. I think I would cry if we had $10 million!
Ways to make it better...
we had a cure! I hope one day we're able to close up shop!
In my opinion, the biggest challenges facing this organization are...
Our lack of funding. Pre-e isn't sexy, but it touches so many women. In this day and age, women and babies just should not be dying like this!
One thing I'd also say is that...
Working with this group has been so therapeutic for me. It's not always easy to talk about the night you held your daughters as they died, but I know I'm never alone...my family, my friends, my doctors and PF have all been there for me.
When was your last experience with this nonprofit?
2010
