My Nonprofit Reviews

I have known the Barth Syndrome Foundation (BSF) for more than a dozen years and have watched it serve families with support and information, invest in research and dedicate itself to educating physicians about this extremely rare illness. With a small staff and big plans, BSF is now working hard on treatments, including the beginning of clinical trials. This small organization supports scientific research every year through carefully selected grants vetted by a world class Science and Medicine Board. BSF meets the standards of the Better Business Bureau and the National Health Council. It is an extraordinary organization.