My Nonprofit Reviews

AZ SPED GIRL - charity reviews, charity ratings, best charities, best nonprofits, search nonprofits


375 profile views
1 reviews

Review for The Parent Project for Muscular Dystrophy Research Inc, Middletown, OH, USA

Rating: 5 stars  

Parent Project change our lives. When our son was first diagnosed with Duchenne Muscular Dystrophy six years ago, we were told by top physicians to go home and love our son becasue there was nothing they could do. PPMD told us that wasn't true. Now, years later, our son is in a clincial trial and on a working compound due to PPMD and our involvement with them. They have educated us, inspired us, given us a family/support system and continue to lead us to the cure. When you have a child diagnosed with DMD and you are in the dark, coming across PPMD is like having someone turn on the light.

I've personally experienced the results of this organization in...

my child's standards of care, my access to top professionals, my support system in other parents, the research and education and taught how to advocate.

If I had to make changes to this organization, I would...

I would change the conference a little. I'm relieved I don't run this company.

What I've enjoyed the most about my experience with this nonprofit is...

How safe I feel belonging. I know whatever is going on out there regarding DMD, I am in the know.

The kinds of staff and volunteers that I met were...

Amazing and caring beyond what I could write.

If this organization had 10 million bucks, it could...

Cure the disorder forever and hopefully go out of business.

Ways to make it better...

We didn't have DMD

In my opinion, the biggest challenges facing this organization are...

Always needing more funding.

Should this review be counted for a specific campaign?

AZ Dept of Education

When was your last experience with this nonprofit?


Role:  Client Served & I joined thier network.