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dwderm

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1 reviews

Review for Oxalosis and Hyperoxaluria Foundation, New Paltz, NY, USA

Rating: 5 stars  

As a parent of a child with Primary Hyperoxaluria, I truly appreciate the support and comfort I get from the OHF. From the very begining the organization helped us to get the best medical care available.In addition, the access to patients and families with the disease provided and invaluable tool from which to learn. Early on it became clear that more research would be needed in order to hopefully find a cure for this disease. Both my husband and I joined the OHF team in hopes that one day our efforts would cure and prevent this disease.

I've personally experienced the results of this organization in...

The OHF has become an extended family. They are there anytime a problem arises. Their guidance is invaluable and their access to the best doctors in the field cannot be beat.

How frequently have you been involved with the organization?

About every week

When was your last experience with this nonprofit?

2010

Role:  Board Member & I am the director of Scientific Affairs and I help with fund raising.