My Nonprofit Reviews

Writer - charity reviews, charity ratings, best charities, best nonprofits, search nonprofits

Writer

31 profile views
1 reviews

Review for Spina Bifida Association of Western Pennsylvania, Wexford, PA, USA

Rating: 5 stars  

Spina Bifida Association of Western Pennsylvania (SBAWP) has and continues to be an important resource for my wife and I along with our daughter who was born with spina bifida and is now 17 years old. SBAWP offers a number of programs for families with loved ones with spina bifida from birth through adulthood. For our family, SBAWP was a tremendous advocate early in our daughter's life by assisting with the individualized education program (IEP) when she started school and continues as she prepares to graduate from high school and move onto college. Their camp/weekend retreat program not only offers the youth and adults the opportunity to enjoy camp like all the other kids but also gives them the opportunity to demonstrate the ability to live independent from their parents. Not only does the camp/weekend retreat program offer the parents' comfort in allowing their child with spina bifida to live independent (like college), it also gives the parents a needed respite. For my daughter, SBAWP camp is her favorite week of the year. SBAWP also offers a wellness program and seminars that give families a forum to hear and talk to local medical professionals and medical suppliers. As you can see, SBAWP has been and remains a blessing to our family. Thank you SBAWP for caring for our children.

Role:  Board Member