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mary34

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1 reviews

Review for Cystic Fibrosis Support Network Of Michigan, Troy, MI, USA

Rating: 5 stars  

MPDCI used to provide a camping experience for children with cystic fibrosis who were not able to attened "normal" camps due to their therapy/treatment needs. Due to potential spread of infection, the camping experience for them as a group (we had 125 campers with 100 all volunteer staff at one point) we had to come up with other ways for them to support each other and have "normal" experiences. Now MPDCI provides special activities for adults with CF and also provides CARE packages for up to 220 children with CF. These packages brighten their day, let them know they are not alone and provide means to connect with others with CF. "Scholarships" are provided for education, recreation, and even for lung transplant children since so many expenses are not covered by insurance. In addition, a newsletter provides latest updates on CF treatments and acknowledges birthdays and unfortunately, deaths of MPDCI children. This organization provides so much for children and adults with CF, and continuously works very hard to raise the funds to support all these activies. It is composed of all volunteers, including some board members who have CF. There is so much it does that a short review cannot begin to capture the support and positive outlook it brings to these children (and their families)!

I've personally experienced the results of this organization in...

As a volunteer over the last 30 years, working with MPDCI has changed my life - one cannot put into words the effects of working with all volunteers to improve the lives of persons with CF.

How frequently have you been involved with the organization?

About every month

When was your last experience with this nonprofit?

2010

Role:  Volunteer & Served as camp staff and board member.