My Nonprofit Reviews

We have been a part of HopeKids for about 3 1/2 years. My youngest son, Joshua, is our HopeKid. He is 9 years old and has a complex neurologic disorder that is life threatening and encompasses respiratory and cardiac complications, epilepsy, severe gastric issues, cognitive delay and paralysis. HopeKids have given our family more than I could put into words. It has given our family the opportunity to just be a family again. To step away from the medical world, the fears and the struggles and just laugh and make unforgettable memories.

My son was diagnosed with this very rare disorder and I reached out to this organization just trying to find a place to start. I was overwhelmed with support, help in answering questions and people who understood the path we were on. Especially for people with such a rare disease, organizations like these are so important. There truly is no information available in other places. Even most doctors are unfamiliar with AHC, so this organization is such a support and help. Thank you for the bear and for the outpouring of support and help!