My Nonprofit Reviews
Review for HopeKids, Scottsdale, AZ, USA
We have been a part of HopeKids for about 3 1/2 years. My youngest son, Joshua, is our HopeKid. He is 9 years old and has a complex neurologic disorder that is life threatening and encompasses respiratory and cardiac complications, epilepsy, severe gastric issues, cognitive delay and paralysis. HopeKids have given our family more than I could put into words. It has given our family the opportunity to just be a family again. To step away from the medical world, the fears and the struggles and just laugh and make unforgettable memories.
Review for Cure AHC- Alternating Hemiplegia of Childhood, Rolesville, NC, USA
My son was diagnosed with this very rare disorder and I reached out to this organization just trying to find a place to start. I was overwhelmed with support, help in answering questions and people who understood the path we were on. Especially for people with such a rare disease, organizations like these are so important. There truly is no information available in other places. Even most doctors are unfamiliar with AHC, so this organization is such a support and help. Thank you for the bear and for the outpouring of support and help!